{"id":212,"date":"2009-01-08T19:08:36","date_gmt":"2009-01-09T02:08:36","guid":{"rendered":"https:\/\/melanarrative.com\/?p=212"},"modified":"2009-01-08T19:08:36","modified_gmt":"2009-01-09T02:08:36","slug":"a-pat-on-the-back-and-some-goals","status":"publish","type":"post","link":"https:\/\/melanarrative.com\/?p=212","title":{"rendered":"A Pat on the Back, and some Goals"},"content":{"rendered":"<p><strong>Things that it is important for me to remember I have overcome:<\/strong><\/p>\n<ul>\n<li>Mouth lesions (twice)<\/li>\n<li>Dysesthia is better<\/li>\n<li>I have commuting routine<\/li>\n<li>Hand lesions are better<\/li>\n<li>My eye lesions and eczema are stable and not too bad<\/li>\n<li>I am making food for myself and O (the independence is huge)<\/li>\n<li>The lesions in my nose are better, though not gone<\/li>\n<li>My genital lesions are gone<\/li>\n<li>I have not had any major <a href=\"https:\/\/melanarrative.com\/?p=177\">homeless-person-style dysesthesia attack<\/a> in the street since I returned to NYC<\/li>\n<li>I am much better at regulating my body heat outside which helps the dysesthesia<\/li>\n<li>I can go grocery shopping<\/li>\n<\/ul>\n<p><strong>Things that are happening that I am managing to get through:<\/strong><\/p>\n<ul>\n<li>I still have dysesthesia, though milder<\/li>\n<li>I still have major itching on my extremeties, and my lower legs and forearms are covered in scabs<\/li>\n<li>I still have major heat sensitivity<\/li>\n<li>My body still aches if I don&#8217;t take Tylenol and advil every six hours<\/li>\n<li>I have lesions in both of my ears, with painful scabs<\/li>\n<li>My mouth is so dry and raw I am having trouble eating: last week I actually couldn&#8217;t get most food In or bite on a sandwich because of the pain, now it is just uncomfortable to do so<\/li>\n<li>I am struggling with holding on to my libido<\/li>\n<\/ul>\n<p><strong>Things I seem to have avoided entirely:<\/strong><\/p>\n<ul>\n<li>I am not depressed<\/li>\n<li>I have not lost my appetite (though I have lost much taste, and gained much weight)<\/li>\n<li>I have remained phenomenally productive in the studio<\/li>\n<li>I was able to finish my book<\/li>\n<\/ul>\n<p><strong>Goals:<\/strong><\/p>\n<ul>\n<li>I need to meditate more<\/li>\n<li>I need to leave the studio earlier<\/li>\n<li>I need to exercise (bike or pilates)<\/li>\n<li>I need to be more emotionally present for O<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Things that it is important for me to remember I have overcome: Mouth lesions (twice) Dysesthia is better I have commuting routine Hand lesions are better My eye lesions and eczema are stable and not too bad I am making food for myself and O (the independence is huge) The lesions in my nose are &hellip; <a href=\"https:\/\/melanarrative.com\/?p=212\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">A Pat on the Back, and some Goals<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[41,44,13],"class_list":["post-212","post","type-post","status-publish","format-standard","hentry","category-metanarrative","tag-back-to-daily-life","tag-hope","tag-side-effects"],"_links":{"self":[{"href":"https:\/\/melanarrative.com\/index.php?rest_route=\/wp\/v2\/posts\/212","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/melanarrative.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/melanarrative.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/melanarrative.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/melanarrative.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=212"}],"version-history":[{"count":0,"href":"https:\/\/melanarrative.com\/index.php?rest_route=\/wp\/v2\/posts\/212\/revisions"}],"wp:attachment":[{"href":"https:\/\/melanarrative.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=212"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/melanarrative.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=212"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/melanarrative.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=212"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}