Things that it is important for me to remember I have overcome:
- Mouth lesions (twice)
- Dysesthia is better
- I have commuting routine
- Hand lesions are better
- My eye lesions and eczema are stable and not too bad
- I am making food for myself and O (the independence is huge)
- The lesions in my nose are better, though not gone
- My genital lesions are gone
- I have not had any major homeless-person-style dysesthesia attack in the street since I returned to NYC
- I am much better at regulating my body heat outside which helps the dysesthesia
- I can go grocery shopping
Things that are happening that I am managing to get through:
- I still have dysesthesia, though milder
- I still have major itching on my extremeties, and my lower legs and forearms are covered in scabs
- I still have major heat sensitivity
- My body still aches if I don’t take Tylenol and advil every six hours
- I have lesions in both of my ears, with painful scabs
- My mouth is so dry and raw I am having trouble eating: last week I actually couldn’t get most food In or bite on a sandwich because of the pain, now it is just uncomfortable to do so
- I am struggling with holding on to my libido
Things I seem to have avoided entirely:
- I am not depressed
- I have not lost my appetite (though I have lost much taste, and gained much weight)
- I have remained phenomenally productive in the studio
- I was able to finish my book
Goals:
- I need to meditate more
- I need to leave the studio earlier
- I need to exercise (bike or pilates)
- I need to be more emotionally present for O