accepting that i was ‘the crazy homeless street kid’

Send to a friend from grad school after i no-showed b/c of a pins and needles attack on the streets of SF

Sorry I never made it to meet you yesterday, but it was not for lack of effort or desire.  I had a meeting that ran a little bit late in Berkeley.  I hopped on the BART, and caught all the trains and all the transfers, i called to let you know i might be late, but got caught off when the train went back underground.  That was probably a surreal voicemail to arrive to today.

I got out at 8th st, and immediately caught a bus going in the right direction.  I even asked the driver to confirm that it went straight down 8th st.  but then after 8 or so stops, it turned right, and i got confused, and got off the bus.  I was lost and confused.  I was meeting O and her cousin, and managed to give them my address 11th and Rhode Island, but had no idea when they would be coming.

I can’t remember if I told you about this when we saw each other briefly at Berkeley, and if so, forgive the redundancy.  I have been in treatment for cancer (Melanoma Stage III) for 9 months.  Surgeries aside, I’m 4 months into a 12 month drug regimen. The drug (Inteferon) makes my body feel terrible in all kinds of ways, but the worst side effect is that I have heat related panic attacks where I get painful pins and needles all over my body. I kind of go fetal in a paroxyism of pain, scratching, and heat.

So I’m having this building panic attack as I’m rolling down 8th st on the bus, scratching at every skin surface, pressing my ice pack against my chest (I keep an ice pack with me). The woman next to me moved to the other side of the bus. There is nothing quite so degrading as having someone get up from the seat next to you, and move across the aisle to another seat away from you b/c they think you might be contagious, or crazy, or violent.

When I got off the bus I was in full blown pins and needles mode. I dropped my bag and a heavy box of flyers for the book, and took my shirt off and tried to calm myself down. the icepack i keep with me had lost its cool an hour earlier. meditating in half lotus didn’t work, so i tried lying down on the concrete, which is cold. and then this security guard kept circling on his bicycle.  after five or so minutes he came up and told me i couldn’t lie down.  I read him the riot act about how I had cancer and that I had heat related symptoms, and i needed to get cold by lying on the concrete.  He didn’t give a shit.  He brought someone over, and they started talking and pointing at me.  I panicked and ran around the corner.  Then I panicked even more because I wasn’t in a place where O could find me, I didn’t know what her cousin’s car looked like, and she wasn’t picking up her cell phone.

I’m in hysterical tears, huddling shirtless with a box and a shopping bag with my stuff.  Scratching at my body.  Freaking out.  And this more formal security guard walks around the corner, and approaches me.  He asked me if I was okay, and between tears i said no.  I told him what had happened, and how I needed to get back to that corner, but was scared of his associate.  I told him about the cancer.

I was beginning to realize something weird was happening w/ the logic of cancer, illness, homelessness, and schizophrenia.  I could tell he was kind of not believing me, and I pulled out my business card to give it to him to prove I was a “real person” or something.  He held it, but didn’t look, and said something like “it’s cool man, i know you, i’ve seen you around.” and then i got instantly clearheaded and went off on him.  I gave him a whole miniature lecture on why he had never seen me, how i was a professor in NYC, that I was here on business, and just gave a lecture at berkeley.  And he was just nodding.  And I realized there was *no way* i could convince him I wasn’t a homeless schizophrenic.  Which is the condition (or anti-condition) of the schizophrenic, right?

He was good, though.  used to dealing with the crazies.  and for that moment, i accepted that i was ‘the crazy homeless street kid.’  he said that i should go back to that other corner and wait for my “friend” to pick me up.  he told me i should just sit on the other side of the street, as the tenants he represented got paranoid about “stuff.”  and he reached out and shook my hand: “we’re cool, right?”

I went back to the corner, and shuffled over to the bus stop on the opposite corner. they can’t kick me out of a public bus stop, right?  Finally, O showed up, and my attack was over.

As you said in your message (which i didn’t get until after it all was over) it is tricky to get there.  I guess 8th ends, then starts again, and that the southern part is quite confusing, and hard to get to.  So this is a long, round about way of saying that I really wished I could have met up, and seen your space, etc.  but sometimes life gets in the way.  This has been a year of life getting in the way of life.

m

My brother is on a plane to San Dieigo

And I am now here by myself.

Before I went to sleep, we raised a toast with the leftover champagne from his Sunday party.  I had less than half a glass, but on top of the other drugs I am on, I was nearly immediately woozy.  I slept harder than I have in months.  I woke up in the middle of the night to turn off the fans, and walked into more than one wall or piece of furniture.  Very deep, heavily drugged sleep.

Today is the first transitional day to Fall.  Its not Fall yet, but it isn’t Summer anymore.  Last night I didn’t have to run the AC, and I even turned off the fans in the middle of the night and put on the duvet.

So this morning it is twice as quiet.  No S, no whirring air.

I woke up from a dream in which I was crying.  I was crying in the dream. I don’t think I was crying physically, though I woke up with all the emotions of crying.  The dream was an extended “I forgot to wear my clothes” dream.  As a teacher, these dreams happen to me.  Once I actually forgot my clothes, but that is a whole other story.  Usually I am not worried about being naked — I worry about the other people made uncomfortable by my nakedness. but this time I was worried, even though I did have underwear.

In the dream I got into an argument with my father about underwear — this make no sense, b/c it was a dream, but I think I was borrowing someone’s iPhone to watch a youtube video about underwear, and my father got angry because I he had ironed my underwear, and that was not enough, i had to go look at underwear too!  This, of course, makes no sense because my father doesn’t ever do my laundry, and i have never in my life had ironed underwear.  That might be fun.

Somehow we were all outside, surrounding a school bus.  I was in the bus.  Everyone was outside.  I cursed angrily and threw my housekeys at the front window, which made a small chip or crack in the window, and walked out of the bus.  The outside turned into the tightest bend in the street that I grew up on, and I started walking through tall grass in the direction of my parents house.  Crying.  I was in front, but I could feel the presence of my brother walking with me, to my left and a pace behind me.  Some other people, who might have been friends or might have been relatives broke off from the group and started walking behind me.  I was still crying in the dream.  Then I woke up.

I have a habit of having the most obvious dreams.  Really unsubtle…

On top of all this, I think I’m getting sick again

The good news is that I have started meditating again.  I’m going to a class w/ O.  Its Yoga, not the kind I did before.  But close enough.

Just how hot the subway ride is

Subway platforms have been the bane of my return to NYC.  They are so hot.  They compelled me to go get the ice vest.  Today, the NYTimes writes on the heat on the platform:

This week, I bought a thermometer, hopped on the F, and rode back to Second Avenue, where the temperature on the platforms ranged from 97 all the way up to 101 degrees — all while it was only a relatively mild 86 degrees above ground.

The thing missing from the story is that it is always really humid down there.  Probably from all the sweat evaporating off of the heat struck riders standing around waiting for the next train to arrive.

Feeling better this morning

i hope i’m not speaking too soon, but this morning i just feel like i am a little bit hungover.  like three glasses of wine hungover.  i slept through the night.  i shot up around 1am.  its 11am now.  i slept 9 hours.  if i had chills and fever i was able to sleep through them.

It was relatively cold outside (74 or so) so S proposed not using the AC last night, and just having lots of fans.  So it was in the high 70’s.  Maybe that helped.

Tired, achy, and sick feeling, but this round was a whole order of magnitude better than the first round.

Verdict: Ice Vest Rules!

The ice vest totally worked.  I feel better than I have felt since I returned to NYC, even though I had a full day.

I wore it for 3 hrs running errands in the morning and in in to the studio.  Refroze the ice packs (though I don’t think they fully froze b/c they were stacked on top of each other…). Then I wore it to meet BH for lemonade, ride the subway to chinatown, get a massage, and then eat dinner.  After about 4 hours, all the umph was gone from the packs, so I took it off for the last ride home.

Frankly, I think everyone who gets overheated should be wearing one of these during the summer here.

Yay!

My New Ice Vest: I’m kinda like an Olympic Athlete

The hardest part right now is the heat.  And the worst is walking to the subway, and waiting on the platform.  The commute wipes me out so bad.  At some point this week I had a flash of an idea: an Ice Vest.  P had told me about them being used by elite distance runners before the race, and I saw the riders in the Tour De France warming up with them on.  The athlete idea is that you warm your legs up, but keep your core temp down (extending endurance performance by 21%).  My idea is that I will not overheat, extending performance by huge physical and thus emotional leaps and bounds.

The vest is made by StaCool.  I wore it this morning for about three hours.  On the way to my psychologists, during the session, on my way back, around the house, and then on the commute to the studio.  It kept me cool the whole time.  By the end, between the melting of the ice packs and the pressure of my backpack on the vest, the back bottom of my shirt got pretty wet.  Maybe related to the pressure of the pack.  Maybe just what happens after 3 hours.  Anyway, it kept me cool.  It worked.  I love it.

Me on the subway this morning, with my new ice vest.

StaCool Ice Vest

A studio photograph of the same vest looking a bit cooler than mine:

David Millar warming up in an Ice Vest.

Nike’s new PreCool vest, to debut at the Beijing Olympics

Managing the side effects, managing the heat

S and i went to the coop yesterday.  it was EPIC.  an official record: $346.24. it was so hard(core), I almost started crying towards the end.  we got three watermelons! (watermelon is the only thing i can consistently eat everytime.)  i was totally exhausted.  i just sat down in front of the CLIF bars and tried really hard to breathe.  i was actually, kind-of, meditating in the Park Slope Food Co-op. Really.  S sat down next to me.  and we just sat for a minute or so.  while the craziness of the co-op went on around us.

today & yesterday I am doing better.  maybe it was because I didn’t try to work yesterday.  i stayed home and read in bed. (and went to the coop.)  also, it was much cooler today.  the weather has been kicking my ass so bad.  it is the worst that the NY summer can offer.  by the time I made it to the studio I was a wilted flower.

i think i can feel the good effects of coming off the drugs, but its hard to tell because the weather has also been better in the last few days, and i have pushed myself less.

That was complicated, let me try that again: When I got back to NYC the weather was so hot and humid, and my symptoms from the Interferon correspond quite perfectly to how I feel in hot and humid weather, so I was really unsure how much of what I was feeling was drugs and how much was the NYC weather.