Tag: apartment

I’ve never been happier about a runny nose

I got a humidifier yesterday.  I put about a gallon of water into the air of my little apartment, and fell asleep.

When I woke up my nose was moist, if a little runny.  So much better than the barren desert craggy nasty bloody snot crust lesions I have spent the last two months waking up to.

nice mental image, eh?

Strange but successful bath

My landlord is trying to fix the leak that is coming from my bathroom.  While I was gone today, his contractor decided that it was necessary to rip out the shower as well as the sink.

I took a bath tonight.  A pretty strange bath.  But the first bath I’ve taken since the first surgery in February.  It took forever for the Dr. to deem my scars healed enough to be in a hot bath.  And then it was just too darn hot to *want* to take a bath.  And then I was afraid that the heat from the bath would trigger pins and needles.

Well, the bath wasn’t super hot, but I did stay in for a while, and no pins and needles.  Which is good.  I feel relaxed.

bubble bath

I did the dishes

I did the dishes this morning.  This is no small thing.  I haven’t really done them for 7 months…  P and S and mom did them.  But S is in San Diego.  And my apartment is quiet and empty.  And the 48 hours of dishes were slowly building up.  And I took 10 minutes before I left today, and did them.

I started a mediatation class this monday.  Its Yogic.  Which is a little weird for me, b/c it involves God talk.  I just think of it all as a metaphor.  But there were some really good things that the really cute young monk talked about.  One of them was the idea that you are always either reinforcing or correcting behavior.  Every decisions reinforces that behaviour.

The monk used the example of cupcakes from Billy’s Bakery.  He obviously loves them.  If you walk by and smell the wonders of the cupcakes, and have one, the next time, you will want one.  You will be habituated to them.  If you go in then, you will almost expect to do this again and again. You get the ball rolling, and it rolls on its own inertia.

Conversely, it is hard to bring yourself to meditate at first.  It seems painful, and hard.  But the second time it is easier.  And the third even easier, and before you know it, it is just part of the routine.  You get the ball rollling and it rolls on its own inertia. Or at least that is the idea.

So washing the dishes is a big first step in getting the ball rolling.  Tomorrow it will be easier to do the dishes, and by next week, it will be no big deal.  Returning to the New Normal is hard.

Feeling better this morning

i hope i’m not speaking too soon, but this morning i just feel like i am a little bit hungover.  like three glasses of wine hungover.  i slept through the night.  i shot up around 1am.  its 11am now.  i slept 9 hours.  if i had chills and fever i was able to sleep through them.

It was relatively cold outside (74 or so) so S proposed not using the AC last night, and just having lots of fans.  So it was in the high 70’s.  Maybe that helped.

Tired, achy, and sick feeling, but this round was a whole order of magnitude better than the first round.

Reality Check (first day back)

I went in to the studio today.  I was around for a little over 4 hours.  Mostly checking in with people, saying hi, writing email etc.  Between the work effort and the viciously hot-and-humid commute, it was too much.  I came home at 5PM and passed out soon after.  Its 9:30PM and I just woke up.  I’m groggy and basically need to go back to bed.

Diagnosis: Invasive Malignant Melanoma

I am writing this to help me remember what has happened to me. One of the most amazing things about trauma is its ability to erase memory.  I’m sure it is a Darwinian survival mechanism.  If you dwell too much on terrible things that have been done to you, you will never be whole again.

But these four months have changed so much about me that if I do not reckon with what has happened to me I might not understand whom I have become

—

On February 22nd, 2008 I received my diagnosis of Invasive Malignant Melanoma, the bad kind of skin cancer.

It was snowing out.

I left my dermatologist and trudged through the greying snow berms of TriBeCa to the offices of a fancy non-for-profit art organization for a meeting about their website.  They have a big website that had a lot of problems, and they wanted my web design collaborator and I to redo it.  Or at least tell them how we would, and how much it would cost.

Straight out of the drs appt I walked into this business meeting for the largest site I had ever bid on, and totally rocked the meeting.  I was totally on point.  I answered every question the right way.  I dropped all the right references.  Made them totally reassured about the right things.  And they had no qualms when we told them it was going to cost $100-125K for their site redesign.

Two weeks later we found out the director wanted us to do it, but their board wanted to go w/ some other more mainstream “firm.”  While it was dissapointing, it was a blessing in disguise.  Because I had Melanoma.

So despite my diagnosis, I held it together.  I rode the train back uptown with my collaborator, got off at the same stop, but turned in different directions, as he went back to his appartment, and I went to the studio.

I held it together until I arrived at the studio.  then i fell apart.

I walked in, stunned, and SL immediately asked me what happened.  “Was Dallas that bad?” referring to a conference I had been at the previous three days.  And I told him.  He was the first person I told.  I think I said “I don’t even know how to say this… I was just told I have Melanoma.”  He made some perfect jokes about cancer that I forget – he has a great way of using humor as a healing mechanism.  And told me that his wife’s mother was diagnosed with Melanoma twenty years ago, and is still alive and well.

I sat down and wrote this email to my parents, my brother S, my roommate P, my good friend X and the woman I was seeing K:

i’ve been having a rly shitty 36hrs.

my flight was cancelled out of dallas.  i had to sprint through the airport in houston.  this time i made the flight, and when i sat down in my seat, the phone rang.  it was my dermatologist’s assistant asking me to come in as soon as possible to speak w/ the derm about the lab results from the supposed blood blister he removed on my right calf.  i asked him to specify, but he said that the dr wanted to speak to me in person.

so i spent much of the flight having horrific visions of me as a chemo patient.  at the same time knowing that was really fatalistic for skin cancer.  but also knowing that i am not stupid, and that the results were most likely skin cancer.

and then when i got off the plane, i got a msg from my lawyer saying that the condo plan was going to be approved in the next day or so.  He had been trading phone calls with the atty gnrl to slow it down two or three days so as to make it go past march 1st, but that was not going to be possible.  to remind, march 1st is the day after which i am on a new lease in the apt w/o J on it.  this is significant, b/c it reduces her claim to a right to purchase the apt.

great, right?  double whammy.  spent the evening in a daze.  not sure whether to email about everything, or not.  whether to talk about the fear of cancer, or not…

yeah, so went into the dr today. yeah, so it was a malignant melanoma.  “i have cancer.”  weird, right?

it was “Clarks Level 3” of 5.  The depth was 1.88mm. Less than 1mm lymph node biopsy is not needed.  More than 3mm, and you go straight to chemo.  There was no ulceration, which means that it didn’t break the upper reaches of the skin, or something like that, which it has to do to spread to the lymph nodes.  So, it could be worse, could be better.

i have apt on monday w/ melanoma specialist who will excise a moderate sized chunk of my right calf, and send me to a different specialist who will biopsy my lymph nodes. if the sentinel nodes (back of knee, groin) are clear, then i watch carefully for two years and am a new man.  if they are not clear, then there is “other stuff.”

at one point i asked him whether i was going to die.  it is weird to ask that question.  he said that people do die from this, but that it was unlikely in my case, and that regardless it was too soon to speak about percentages and outcomes. i have to wait for results from lymph node biopsy.

so here i am at the studio.

i just arrived.

im ready to go home.

i haven’t cried yet, but it will happen.  still a little shell shocked.

m